By Scott Gottlieb (original source The Wall Street Journal)
“The Centers for Disease Control and Prevention made its first definitive statement last week describing a rare but disturbing condition in children related to Covid-19. Doctors in the U.K. first reported in April a spike in previously healthy children presenting with features similar to another rare condition, Kawasaki disease, whose symptoms include rash and fever and, later in its progression, inflammation of blood vessels.
This is a reminder of how much we don’t know about Covid-19. We’ve learned a lot over the past two months as Covid-19 became an epidemic, with 1.5 million Americans diagnosed and more than 90,000 dead. New insights have translated into improved care. This knowledge is saving lives and will be especially useful if infections flare up again.
Yet such data on patients isn’t being streamlined and shared with the public quickly. There are shortcomings in our ability to access the electronic systems designed to help glean facts from clinical data. CDC hasn’t been filling its traditional role of promptly publishing medical findings that may help doctors care for patients. Instead, a lot of this information is being passed around social media, by email or even through word of mouth. It’s trial and error on a global scale.”
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